Apondo, E. et al. 2023. Establishing Adaptive Governance in NFDI Consortia:: Lessons Learned from Deliberative Forums with Patients on their Role in the Governance of the German Human Genome-Phenome Archive (GHGA). Proceedings of the Conference on Research Data Infrastructure . 1, (Sep. 2023). DOI:https://doi.org/10.52825/cordi.v1i.262.